Life With Lexi
If you want to laugh, cry or learn a little more about hearing loss, you've come to the right place. I have a fabulous daughter, Lexi, who was born deaf & has cochlear implants. Lexi also plays very competitive travel softball as a pitcher, basketball and more. I have an amazing son, Jacob, who has ADHD & loves anything outdoors...and a hard-working husband, Kevin, who farms and does a little bit of everything for his famous brother and mega-vocalist, Gary LeVox of Rascal Flatts. Our lives are a little crazy trying to balance it all! My blog is meant to inspire and also let you in on a secret: we are all just taking it one day at a time!
#LifeWithLexi began many years ago when Lex showed she was going to be my shenanigan kid. The blog covers many topics from hearing health to rehabilitation to my passion that everyone can become a world changer and do something with their story.
It's about being honest about highs and lows raising special needs children in a mainstream world. It's about saying things the way they are and getting better with every life lesson.
It's about helping and empowering men, women, parents, grandparents and people living with "disabilities" (dare I use that word??) to allow them to have miraculous outcomes. It's about SWEAT EQUITY.
We'll also share our latest press releases of our outreach work here.
If you're ever interested in hearing more about a certain topic or subject, email Jaime at firstname.lastname@example.org.
If I focus on the TRANSITION and what we are learning, what we are experiencing, the MOMENTS, then I can appreciate the good and the bad.
The Hearoes Tour travels the nation to raise AWARENESS, increase ACCESS and encourage ACTION around hearing loss, the number one service-related injury affecting veterans
Watching an athlete with hearing loss navigate & face challenges can be rewarding and also heartbreaking at times. Help them learn to ADVOCATE for themselves. This COACHING TIPS one-sheet is great for the athlete to review with their coaches.
Vernon continues, "I wanted every American to have awareness and access to QUALITY hearing healthcare. I wanted Americans to know how important hearing and spoken language is. I wanted to encourage all Americans to take ACTION."
Here's the deal. You cannot afford to miss these appointments. Didn't you fight for your child to have hearing? Didn't you advocate for your parent to get those hearing aids? We are all not yet at the finish line, folks. We've started the race, but we're in the middle. We are pacing ourselves right now. The finish line is something of a dream. We have to accept that we're going to be in the middle of the race for a very long time. Become okay with exercise.
Now, teen and tween years are here. What's more challenging than hormonal teens? Easy ... hormonal teens with hearing loss. Mental fatigue and raging hormones can knock a momma flat on her back.
So here it is... the greatest challenge of them all. Watching your hearing impaired child navigate friendships and independence. One of the greatest pieces of advice I can give you is this.... LET THEM LIVE IT.
Imagine a soldier returning from overseas only to be completely disconnected with everyone. They can't hear well, can't communicate and start to withdraw. Imagine that soldier not being able to hear "I love you daddy" whispered from his or her child.
Planning an Independence Day gathering should be about creating community, not a source of stress. We’ve compiled a list of everything you need to throw a party your guests will rave about.
It's an amazing life-methaphor we live in this world of hearing loss, we feel like no one is listening to us or helping during the times of our lives, or our child's life, when there is silence or little sound. We look around asking for help, seeking answers trying to find a way to HEAR.
This month, May, is Better Hearing and Speech Month. So, what better way to help others move into their own hearing journey than ask the girl behind our mission, Lexi, herself? Someone who has and still lives in a world of silence and a world of sound.
MAY is BETTER HEARING AND SPEECH MONTH: Our movement is based on a simple notion: IMAGINE YOUR LIFE WITHOUT THE GIFT OF HEARING MUSIC. A set of lyrics that help you heal when you lose a loved one. A song that allows you to endure that breakup. Your wedding song. Your break up song. Your graduation song. Your 'I just beat cancer' song.
It's time! The Hear the Music Gala is our night to share our work with our donors and engage new Nashvillians with our work to help those living with deafness or are hard of hearing (HOH) to HEAR.
The night is full of back to back fun and entertainment, so this is for guests to understand what to expect, what to wear, how to bid and more!
Music and lyrics help us HEAL. Music and lyrics help us connect with each other. We get to dance, laugh and love through MUSIC.
But did you know MUSIC can be an incredible tool for auditory & speech therapy?
ALL THE AWESOMENESS in the big and small things are to remind us how amazing God is.... life isn't always going to be rainbows and sunshines. Some days, you'll experience the blindness and deafness of life. So take time to SLOW DOWN and see the AWESOMENESS of God in all the small things each day, because those moments will create a humility inside of you to get through each day with GRATITUDE and a good attitude!
Our March 2019 Newsletter about The Hear the Music Project, Hear the Music Gala, Kids Camp, Mission trip and more...
Caitlyn Fisher is an 18 year old Nashville high school student who enjoys breaking each and every "disability" stereotype.
Despite being diagnosed with profound hearing loss & communicating via hearing aids and spoken language, Caitlyn has won a Leadership Scholarship at her dream school, Samford, and mentors freshman students at her high school's internship program.
Navigating pre-teen social situations, social media, friendships and that four letter ugly word: BOYS, with a my hearing-impaired, cochlear implant daughter, Lexi, kind of smacked me in the face harder than anticipated. She's a child who is seemingly like her peers and is extremely poised, collected and confident when competing in sports or dancing in a performance. So when I went over her texts to classmates with her, I realized .... THE NEXT MILESTONE HAS ARRIVED. And then the moment happened which reminded me of the incredible trust we've established BECAUSE of her deafness and cochlear implant journey....she asked the question mommas long for (in true Lexi fashion), "Momma, will you teach me some swagger?"
Florida's RV SuperShow is January 16-20, 2019. This show is recognized as the greatest RV show in the country. Campers welcome, daily seminars, over 450 vendor booths and more than 1550 RVs covering 26 acres – it is a site to see!
This year, they are bringing in a fantastic charity, Songs for Sound. Songs for Sound has many programs, however, their most extensive is The Hear the Music Project brings a mobile hearing health clinic to community sites throughout the nation, providing free hearing tests, hearing protection, and information on various hearing solutions available today.
Studies have shown that people with hearing loss wait an average of seven years before getting hearing aids. Why? Stigma associated with appearing old is one commonly cited reason. But there’s another, simpler reason: inertia. The Bachelor Australia host Osher Günsberg waited more than a decade. But when he finally got high-end hearing aids, his life improved dramatically.
Songs for Sound proudly announces the addition of Continuum Financial's Chris Robinette to its impressive board of directors.
ACCOMPLISHED JOURNALIST AND PR SPECIALIST TO USE HER EXPERTISE TO HELP SONGS FOR SOUND GROW ITS HEARING LOSS AWARENESS IN MUSIC CITY AND ACROSS THE US.
20,000 PEOPLE GIVEN FREE HEARING TESTS. 20K in just 3.5 years. 20K because of a little girl, a passionate mom and some of the most loyal sponsors and donors in the world. Whether you've given $20 or $200,000, this is for YOU. Thank you. Congratulations. You are this mission....ENJOY.
Why am I blogging about #11? That's right. TODAY, December 5th, marks my daughter's 11th birthday. Usually moms will share milestones at 1, 5, 10, 13, etc. But 11, 9, 8, all of the birthdays we have year over year mean so much to us.
After I received the reluctant referral to an Audiologist, we heard the news, "Lexi is profoundly deaf." The next five minutes would not only transform Lexi's life, but also ignited a passion in me to start Songs for Sound. "Your child is likely a great candidate for a cochlear implant. It's a surgically implanted device that can bring back sound to the deaf."
We met Daniel at age 1 ½ and had no idea that the little boy who stole our hearts couldn’t even hear us say his name.
October is Breast Cancer and Audiology Awareness Month. How can you get involved?
Lachlan’s Cochlear implant definitely opened up a new exciting chapter in his life. Lachlan now attends a main stream school which is set up with a rogar system, has a teacher of the deaf who visits him weekly and he continues to have speech therapy once a night. Early Intervention at Taralye, the oral language centre for deaf children here in Australia, definitely helped shaped Lachlan’s future. He attended Taralye from a baby until he was 5 years old.
Lachlan just loves his ‘Super Ear’!
"When people think of hearing loss and partial deafness, they immediately think about a quiet world that they will be forced to live in. In some cases that cannot be further from the truth. Few people realize that noise-induced deafness results in a loud, annoying sound inside one's head that just never quits. It interferes with sleep, watching TV, listening to people and reading a book, almost all facets of daily living. So, loss of hearing does not equal a quiet day of fishing during our retirement years. It can be a screaming inside our heads that never stops." (Tinnitus!)
- Contact an ENT physician who is educated about tinnitus.
- Go on-line and use the key word "tinnitus." You'll be surprised at the number of websites that are available. A word of caution when you do this: There are enterprising people out there who make claims of a "cure" for tinnitus and they want your money.
- Contact the American Tinnitus Association (ATA) at 800-634-8978 or click onto its website, www.ata.org, and consider becoming a member. The ATA offers a large amount of reliable information to those with tinnitus.
According to recent news from the ATA, "The ATA received requests from U.S. congressional committees to give expert written testimony on a bill under consideration. The Veterans Hearing Loss Compensation Act mentioned tinnitus specifically as a condition for veteran disability compensation. Through deliberations, senators and representatives gained a much greater understanding of tinnitus, including its impact on the 50 million Americans with tinnitus, its causes including excessive noise exposures…and the critical need for tinnitus research."
- TRT worked for me. It may work for you. Most TRT clinics can be located through the Internet. There are clinics in New Haven, CT; Baltimore, MD; Atlanta, GA; Orlando, FL; Phoenix, AZ; Portland, OR and other locations in the United States,
- Contact the IAFF in Washington, D.C. and request the booklet Fire and Emergency Service Hearing Conservation Program. IAFF Resolution Number 86 outlines the Health Hazard Evaluation and recommendations for reducing hearing damage to firefighters.
Read the full article and story!
FACT: 1 of the 7 Top Side of Effects of Cancer Treatments is ... HEARING LOSS.
Minneapolis, MN, August 23, 2018 – Songs for Sound, a Nashville-based charity working to protect and restore hearing for the 360 million people worldwide that suffer from hearing loss, brings a free hearing health clinic to the 100th American Legion National Convention on Aug. 24th- 30th.
YOUR VISION MUST HAVE PURPOSE.
Right now, as you have a vision. You need to really dive into your mission. What is your purpose and IS THERE A NEED?
I’m constantly preaching “use your story”, “do something with your testimony” and “change the world”, so it’s time I give back something different so others can give back something different. I’m gonna write far more on the topic of starting, managing, and operating a charity.
On Lexi’s hearing birthday, let’s honor her by thanking all the “village people” who help us care of our own needs and the needs of our children.
I’m telling every person with hearing loss technology that persistence, going as hard as you can and testing your limits in ALL phases of rehabilitation is absolutely the key. These things aren’t just the key to HEARING optimally, they are the keys to LIVING LIFE optimally.
The 4th of July is a spectacular display of beauty and booms representing the men and women who paid the ultimate sacrifice for our freedoms here in the incredible United States OF AMERICA.
As I think of how representative that is with our story. God gave us a little girl who had to go through so much which has allowed us to go out and serve this great country each and every day. To date, we've provided over 17,000 FREE HEARING SCREENINGS and handed out of 35,000 pieces of FREE hearing protection!
LEXI VERNON is a 10 year old cochlear implant recipient. She is deaf, but can HEAR.
BLOG SNEAK PEAK: Here's what I've learned in all of this. Each time we go through this storm. Each time we endure the wind and troubles...it is PREPARATION. It is God actually loving you so much, He wants to prepare you for His calling on your life!
BIZBOX OF THE MONTH
SONGS FOR SOUND - Helping people Hear Again!
Songs for Sound is a 501c3 charity founded on a heartwarming story and a passionate objective: to provide AWARENESS OF hearing loss solutions, ACCESS TO hearing loss testing and devices and encourage ACTION for those suffering from hearing loss and deafness. Songs for Sound aims to provide everyone with an opportunity to live a mainstream life full of sound and language, and of course, MUSIC. The story culminated with 14 month old Lexi’s deafness was missed after her parents repeatedly begged for answers.
If you’re considering volunteering with a cause you care about in the community, consider the benefits you can receive. Here are the top eight benefits of volunteering.
"Jaime, it's Paul (our amazing tour manager). I am so sorry to tell you our trailer was broken into and most of our equipment is gone." Paul sadly expressed. "And while I'm on a roll, unfortunately, our truck check engine light came on again which will require repairs."
Here's where I just sat and stared. The very people I'm trying to change tried to stop that very mission. The loss is over $10,000 in technology, equipment & replacing our door; not to mention the events we can't do right now; and to top it off, we need to also fix our truck.
Summertime is for sand, sun, sunscreen and WATER! Summer parties for adults and children can be a blast, however, when you're using hearing technology, it can be a stressful if you don't take proper precautions. My blog post here should help get ready for a low-stress, happy hearing summer!
Mentoring a child helps them to see unlimited possibilities for the future, learn something new and most importantly, realize that somebody cares about them.
If you strive to live an altruistic lifestyle, there are plenty of gifts you can give your loved one on Mother’s Day that also give back to others in the community.
Teenagers are our future; by building them up and encouraging them—even if they’re not our own children—we can create a better future for generations to come.
But, that’s where the story transforms from the birth of our new baby girl and a wave of medical experiences in the hospitals to overcoming fears, obstacles, and providing the best possible life for Winnie – because, you see, she was now profoundly deaf.
"As Keddon walked closer, he finally glanced up. His eyes briefly saw me as he shifted his head back towards the ground and after it immediately hit him, he quickly looked back up, his eyes as big as saucers. He ran towards me with his arms stretched open wide. WE HUGGED EACH OTHER SO TIGHTLY in a way we both needed. LOVE. We speak very different languages; I use English spoken language, he uses JSL, Jamaica Sign Language. But we both speak another language: LOVE. "
Songs for Sound, a 501c3 charity, serves everyone across the USA by educating, screening and assisting navigation of hearing healthcare services. Mobile hearing clinic, Kids Camp, Sound for Soldiers and more, SFS helps everyone HEAR the Music.
What do I mean "somewhere in between"? Well, Lexi and all her deaf/HOH peers who choose technology are hearing. But they're deaf. But they hear. But they don't. I know it sounds like a cat and mouse game when I say it like that, but when you live it, that's exactly what it feels like in most social, academic or athletic environments. I remember a long time ago, I read an article written by an adult cochlear implant recipient. He referred to it so simply: "I'm not hearing, I'm not deaf...I'm Bionic."
Black History Month is a time to remember, celebrate and commemorate the achievements and contributions by African-American men and women throughout U.S. history.
If you want to live a more altruistic life, how can you commemorate Dr. King and continue his legacy? Here are ideas to get started this Martin Luther King Jr. Day.